A Scientific Retreat to Address Ethical Challenges in Data and Sample Sharing to Advance Neurodegenerative Research

The project involves organizing a one and a half-day annual retreat. An organizing committee will annually identify a specific ethical issue as the retreat's focus, then select speakers and attendees. The retreat will feature presentations exploring the state-of-the-science on the topic, combined with moderated and structured discussions, aiming to produce scalable and implementable solutions for ethical data and sample sharing practices.